Emergence of a butterfly: the life experiences of type 1 diabetes Taiwanese patients during the 16-25 years old transition period.
Identifieur interne : 000224 ( Main/Exploration ); précédent : 000223; suivant : 000225Emergence of a butterfly: the life experiences of type 1 diabetes Taiwanese patients during the 16-25 years old transition period.
Auteurs : Yueh-Tao Chiang [Taïwan] ; Hsing-Yi Yu [Taïwan] ; Fu-Sung Lo [Taïwan] ; Chi-Wen Chen [Taïwan] ; Tzu-Ting Huang [Taïwan] ; Chi-Wen Chang [Taïwan] ; Philip Moons [Belgique, Suède, Afrique du Sud]Source :
- International journal of qualitative studies on health and well-being [ 1748-2631 ] ; 2020.
Descripteurs français
- KwdFr :
- Adolescent (MeSH), Adulte (MeSH), Animaux (MeSH), Anxiété (MeSH), Conscience immédiate (MeSH), Diabète de type 1 (psychologie), Femelle (MeSH), Gestion de soi (psychologie), Humains (MeSH), Jeune adulte (MeSH), Mâle (MeSH), Métaphore (MeSH), Papillons (MeSH), Taïwan (épidémiologie), Transition aux soins pour adultes (MeSH), Événements de vie (MeSH).
- MESH :
- psychologie : Diabète de type 1, Gestion de soi.
- épidémiologie : Taïwan.
- Adolescent, Adulte, Animaux, Anxiété, Conscience immédiate, Femelle, Humains, Jeune adulte, Mâle, Métaphore, Papillons, Transition aux soins pour adultes, Événements de vie.
- Wicri :
- geographic : Taïwan.
English descriptors
- KwdEn :
- Adolescent (MeSH), Adult (MeSH), Animals (MeSH), Anxiety (MeSH), Awareness (MeSH), Butterflies (MeSH), Diabetes Mellitus, Type 1 (psychology), Female (MeSH), Humans (MeSH), Life Change Events (MeSH), Male (MeSH), Metaphor (MeSH), Self-Management (psychology), Taiwan (epidemiology), Transition to Adult Care (MeSH), Young Adult (MeSH).
- MESH :
- geographic , epidemiology : Taiwan.
- psychology : Diabetes Mellitus, Type 1, Self-Management.
- Adolescent, Adult, Animals, Anxiety, Awareness, Butterflies, Female, Humans, Life Change Events, Male, Metaphor, Transition to Adult Care, Young Adult.
Abstract
Purpose: To explore the life experiences of patients with type 1 diabetes transition from adolescence into adulthood in Taiwan.Methods: Descriptive phenomenological design was used. Fourteen participants were individually interviewed using a semi-structured interview.Results: The life experiences of patients with type 1 diabetes transition from adolescence into adulthood experience a metamorphosis from awareness of responsibility to figuring out a way to care for themselves. Six themes emerged: (1) hibernation: awareness of responsibility; (2) emergence: attempts to take responsibility; (3) perseverance: encountering difficulties; (4) anxiety: multiple worries; (5) hesitation: back-and-forth," and (6) exit: finding a way out."Conclusions: During the transition phase, the participants experienced the trials of various situations. Regardless of whether they are able to independently bear the responsibilities of self-management, they all hope to turn around the challenges of disease control and take ownership of their disease. Like a butterfly that emerges from a cocoon, they hoped to overcome the dangers of taking flight through trial and error and navigating the world. The results of this study can serve as a reference for clinical care and developing localized intervention strategies targeted to the transition period between adolescence and young adulthood.
DOI: 10.1080/17482631.2020.1748362
PubMed: 32292126
PubMed Central: PMC7178814
Affiliations:
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Taiwan.</nlm:affiliation><country xml:lang="fr">Taïwan</country><wicri:regionArea>School of Nursing, National Yang-Ming University, Taipei</wicri:regionArea><wicri:noRegion>Taipei</wicri:noRegion></affiliation></author><author><name sortKey="Huang, Tzu Ting" sort="Huang, Tzu Ting" uniqKey="Huang T" first="Tzu-Ting" last="Huang">Tzu-Ting Huang</name><affiliation wicri:level="1"><nlm:affiliation>School of Nursing, College of Medicine, Chang-Gung University, Tao-yuan, Taiwan.</nlm:affiliation><country xml:lang="fr">Taïwan</country><wicri:regionArea>School of Nursing, College of Medicine, Chang-Gung University, Tao-yuan</wicri:regionArea><wicri:noRegion>Tao-yuan</wicri:noRegion></affiliation><affiliation wicri:level="1"><nlm:affiliation>Department of Neurology (Dementia Center), Chang-Gung Memorial Hospital, Tao-yuan, Taiwan.</nlm:affiliation><country xml:lang="fr">Taïwan</country><wicri:regionArea>Department of Neurology (Dementia Center), Chang-Gung Memorial Hospital, Tao-yuan</wicri:regionArea><wicri:noRegion>Tao-yuan</wicri:noRegion></affiliation></author><author><name sortKey="Chang, Chi Wen" sort="Chang, Chi Wen" uniqKey="Chang C" first="Chi-Wen" last="Chang">Chi-Wen Chang</name><affiliation wicri:level="1"><nlm:affiliation>School of Nursing, College of Medicine, Chang-Gung University, Tao-yuan, Taiwan.</nlm:affiliation><country xml:lang="fr">Taïwan</country><wicri:regionArea>School of Nursing, College of Medicine, Chang-Gung University, Tao-yuan</wicri:regionArea><wicri:noRegion>Tao-yuan</wicri:noRegion></affiliation><affiliation wicri:level="1"><nlm:affiliation>Division of Pediatric Endocrinology & Genetics, Department of Pediatrics, Chang-Gung Memorial Hospital, Tao-yuan, Taiwan.</nlm:affiliation><country xml:lang="fr">Taïwan</country><wicri:regionArea>Division of Pediatric Endocrinology & Genetics, Department of Pediatrics, Chang-Gung Memorial Hospital, Tao-yuan</wicri:regionArea><wicri:noRegion>Tao-yuan</wicri:noRegion></affiliation></author><author><name sortKey="Moons, Philip" sort="Moons, Philip" uniqKey="Moons P" first="Philip" last="Moons">Philip Moons</name><affiliation wicri:level="1"><nlm:affiliation>Department of Public Health and Primary Care, KU Leuven-University of Leuven, Leuven, Belgium.</nlm:affiliation><country xml:lang="fr">Belgique</country><wicri:regionArea>Department of Public Health and Primary Care, KU Leuven-University of Leuven, Leuven</wicri:regionArea><wicri:noRegion>Leuven</wicri:noRegion></affiliation><affiliation wicri:level="1"><nlm:affiliation>Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden.</nlm:affiliation><country xml:lang="fr">Suède</country><wicri:regionArea>Institute of Health and Care Sciences, University of Gothenburg, Gothenburg</wicri:regionArea><wicri:noRegion>Gothenburg</wicri:noRegion></affiliation><affiliation wicri:level="1"><nlm:affiliation>Department of Pediatrics and Child Health, University of Cape Town, Cape Town, South Africa.</nlm:affiliation><country xml:lang="fr">Afrique du Sud</country><wicri:regionArea>Department of Pediatrics and Child Health, University of Cape Town, Cape Town</wicri:regionArea><wicri:noRegion>Cape Town</wicri:noRegion></affiliation></author></analytic><series><title level="j">International journal of qualitative studies on health and well-being</title><idno type="eISSN">1748-2631</idno><imprint><date when="2020" type="published">2020</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Adolescent (MeSH)</term><term>Adult (MeSH)</term><term>Animals (MeSH)</term><term>Anxiety (MeSH)</term><term>Awareness (MeSH)</term><term>Butterflies (MeSH)</term><term>Diabetes Mellitus, Type 1 (psychology)</term><term>Female (MeSH)</term><term>Humans (MeSH)</term><term>Life Change Events (MeSH)</term><term>Male (MeSH)</term><term>Metaphor (MeSH)</term><term>Self-Management (psychology)</term><term>Taiwan (epidemiology)</term><term>Transition to Adult Care (MeSH)</term><term>Young Adult (MeSH)</term></keywords><keywords scheme="KwdFr" xml:lang="fr"><term>Adolescent (MeSH)</term><term>Adulte (MeSH)</term><term>Animaux (MeSH)</term><term>Anxiété (MeSH)</term><term>Conscience immédiate (MeSH)</term><term>Diabète de type 1 (psychologie)</term><term>Femelle (MeSH)</term><term>Gestion de soi (psychologie)</term><term>Humains (MeSH)</term><term>Jeune adulte (MeSH)</term><term>Mâle (MeSH)</term><term>Métaphore (MeSH)</term><term>Papillons (MeSH)</term><term>Taïwan (épidémiologie)</term><term>Transition aux soins pour adultes (MeSH)</term><term>Événements de vie (MeSH)</term></keywords><keywords scheme="MESH" type="geographic" qualifier="epidemiology" xml:lang="en"><term>Taiwan</term></keywords><keywords scheme="MESH" qualifier="psychologie" xml:lang="fr"><term>Diabète de type 1</term><term>Gestion de soi</term></keywords><keywords scheme="MESH" qualifier="psychology" xml:lang="en"><term>Diabetes Mellitus, Type 1</term><term>Self-Management</term></keywords><keywords scheme="MESH" qualifier="épidémiologie" xml:lang="fr"><term>Taïwan</term></keywords><keywords scheme="MESH" xml:lang="en"><term>Adolescent</term><term>Adult</term><term>Animals</term><term>Anxiety</term><term>Awareness</term><term>Butterflies</term><term>Female</term><term>Humans</term><term>Life Change Events</term><term>Male</term><term>Metaphor</term><term>Transition to Adult Care</term><term>Young Adult</term></keywords><keywords scheme="MESH" xml:lang="fr"><term>Adolescent</term><term>Adulte</term><term>Animaux</term><term>Anxiété</term><term>Conscience immédiate</term><term>Femelle</term><term>Humains</term><term>Jeune adulte</term><term>Mâle</term><term>Métaphore</term><term>Papillons</term><term>Transition aux soins pour adultes</term><term>Événements de vie</term></keywords><keywords scheme="Wicri" type="geographic" xml:lang="fr"><term>Taïwan</term></keywords></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en"><b>Purpose</b>: To explore the life experiences of patients with type 1 diabetes transition from adolescence into adulthood in Taiwan.<b>Methods</b>: Descriptive phenomenological design was used. Fourteen participants were individually interviewed using a semi-structured interview.<b>Results</b>: The life experiences of patients with type 1 diabetes transition from adolescence into adulthood experience a metamorphosis from awareness of responsibility to figuring out a way to care for themselves. Six themes emerged: (1) hibernation: awareness of responsibility; (2) emergence: attempts to take responsibility; (3) perseverance: encountering difficulties; (4) anxiety: multiple worries; (5) hesitation: back-and-forth," and (6) exit: finding a way out."<b>Conclusions</b>: During the transition phase, the participants experienced the trials of various situations. Regardless of whether they are able to independently bear the responsibilities of self-management, they all hope to turn around the challenges of disease control and take ownership of their disease. Like a butterfly that emerges from a cocoon, they hoped to overcome the dangers of taking flight through trial and error and navigating the world. The results of this study can serve as a reference for clinical care and developing localized intervention strategies targeted to the transition period between adolescence and young adulthood.</div></front></TEI><pubmed><MedlineCitation Status="MEDLINE" Owner="NLM"><PMID Version="1">32292126</PMID><DateCompleted><Year>2021</Year><Month>01</Month><Day>28</Day></DateCompleted><DateRevised><Year>2021</Year><Month>01</Month><Day>28</Day></DateRevised><Article PubModel="Print"><Journal><ISSN IssnType="Electronic">1748-2631</ISSN><JournalIssue CitedMedium="Internet"><Volume>15</Volume><Issue>1</Issue><PubDate><Year>2020</Year><Month>Dec</Month></PubDate></JournalIssue><Title>International journal of qualitative studies on health and well-being</Title><ISOAbbreviation>Int J Qual Stud Health Well-being</ISOAbbreviation></Journal><ArticleTitle>Emergence of a butterfly: the life experiences of type 1 diabetes Taiwanese patients during the 16-25 years old transition period.</ArticleTitle><Pagination><MedlinePgn>1748362</MedlinePgn></Pagination><ELocationID EIdType="doi" ValidYN="Y">10.1080/17482631.2020.1748362</ELocationID><Abstract><AbstractText><b>Purpose</b>: To explore the life experiences of patients with type 1 diabetes transition from adolescence into adulthood in Taiwan.<b>Methods</b>: Descriptive phenomenological design was used. Fourteen participants were individually interviewed using a semi-structured interview.<b>Results</b>: The life experiences of patients with type 1 diabetes transition from adolescence into adulthood experience a metamorphosis from awareness of responsibility to figuring out a way to care for themselves. Six themes emerged: (1) hibernation: awareness of responsibility; (2) emergence: attempts to take responsibility; (3) perseverance: encountering difficulties; (4) anxiety: multiple worries; (5) hesitation: back-and-forth," and (6) exit: finding a way out."<b>Conclusions</b>: During the transition phase, the participants experienced the trials of various situations. Regardless of whether they are able to independently bear the responsibilities of self-management, they all hope to turn around the challenges of disease control and take ownership of their disease. Like a butterfly that emerges from a cocoon, they hoped to overcome the dangers of taking flight through trial and error and navigating the world. The results of this study can serve as a reference for clinical care and developing localized intervention strategies targeted to the transition period between adolescence and young adulthood.</AbstractText></Abstract><AuthorList CompleteYN="Y"><Author ValidYN="Y"><LastName>Chiang</LastName><ForeName>Yueh-Tao</ForeName><Initials>YT</Initials><Identifier Source="ORCID">https://orcid.org/0000-0003-0306-1207</Identifier><AffiliationInfo><Affiliation>School of Nursing, College of Medicine, Chang-Gung University, Tao-yuan, Taiwan.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Division of Pediatric Endocrinology & Genetics, Department of Pediatrics, Chang-Gung Memorial Hospital, Tao-yuan, Taiwan.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Yu</LastName><ForeName>Hsing-Yi</ForeName><Initials>HY</Initials><AffiliationInfo><Affiliation>School of Nursing, College of Medicine, Chang-Gung University, Tao-yuan, Taiwan.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Department of Nursing, Chang-Gung Memorial Hospital, Tao-yuan, Taiwan.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Lo</LastName><ForeName>Fu-Sung</ForeName><Initials>FS</Initials><Identifier Source="ORCID">https://orcid.org/0000-0002-5548-9611</Identifier><AffiliationInfo><Affiliation>Division of Pediatric Endocrinology & Genetics, Department of Pediatrics, Chang- Gung Memorial Hospital, Tao-yuan, Taiwan.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>College of Medicine, Chung-Gung University, Tao-yuan, Taiwan.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Chen</LastName><ForeName>Chi-Wen</ForeName><Initials>CW</Initials><AffiliationInfo><Affiliation>School of Nursing, National Yang-Ming University, Taipei, Taiwan.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Huang</LastName><ForeName>Tzu-Ting</ForeName><Initials>TT</Initials><AffiliationInfo><Affiliation>School of Nursing, College of Medicine, Chang-Gung University, Tao-yuan, Taiwan.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Department of Neurology (Dementia Center), Chang-Gung Memorial Hospital, Tao-yuan, Taiwan.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Chang</LastName><ForeName>Chi-Wen</ForeName><Initials>CW</Initials><Identifier Source="ORCID">https://orcid.org/0000-0001-8718-7522</Identifier><AffiliationInfo><Affiliation>School of Nursing, College of Medicine, Chang-Gung University, Tao-yuan, Taiwan.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Division of Pediatric Endocrinology & Genetics, Department of Pediatrics, Chang-Gung Memorial Hospital, Tao-yuan, Taiwan.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Moons</LastName><ForeName>Philip</ForeName><Initials>P</Initials><AffiliationInfo><Affiliation>Department of Public Health and Primary Care, KU Leuven-University of Leuven, Leuven, Belgium.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Department of Pediatrics and Child Health, University of Cape Town, Cape Town, South Africa.</Affiliation></AffiliationInfo></Author></AuthorList><Language>eng</Language><PublicationTypeList><PublicationType UI="D016428">Journal Article</PublicationType></PublicationTypeList></Article><MedlineJournalInfo><Country>United States</Country><MedlineTA>Int J Qual Stud Health Well-being</MedlineTA><NlmUniqueID>101256506</NlmUniqueID><ISSNLinking>1748-2623</ISSNLinking></MedlineJournalInfo><CitationSubset>IM</CitationSubset><MeshHeadingList><MeshHeading><DescriptorName UI="D000293" MajorTopicYN="N">Adolescent</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D000328" MajorTopicYN="N">Adult</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D000818" MajorTopicYN="N">Animals</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D001007" MajorTopicYN="N">Anxiety</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D001364" MajorTopicYN="N">Awareness</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D002080" MajorTopicYN="Y">Butterflies</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D003922" MajorTopicYN="N">Diabetes Mellitus, Type 1</DescriptorName><QualifierName UI="Q000523" MajorTopicYN="Y">psychology</QualifierName></MeshHeading><MeshHeading><DescriptorName UI="D005260" MajorTopicYN="N">Female</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D006801" MajorTopicYN="N">Humans</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D008016" MajorTopicYN="N">Life Change Events</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D008297" MajorTopicYN="N">Male</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D019365" MajorTopicYN="Y">Metaphor</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D000073278" MajorTopicYN="N">Self-Management</DescriptorName><QualifierName UI="Q000523" MajorTopicYN="N">psychology</QualifierName></MeshHeading><MeshHeading><DescriptorName UI="D013624" MajorTopicYN="N" Type="Geographic">Taiwan</DescriptorName><QualifierName UI="Q000453" MajorTopicYN="N">epidemiology</QualifierName></MeshHeading><MeshHeading><DescriptorName UI="D060305" MajorTopicYN="Y">Transition to Adult Care</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D055815" MajorTopicYN="N">Young Adult</DescriptorName></MeshHeading></MeshHeadingList><KeywordList Owner="NOTNLM"><Keyword MajorTopicYN="N">Type1 diabetes</Keyword><Keyword MajorTopicYN="N">life experiences</Keyword><Keyword MajorTopicYN="N">transition; adolescent; young adults; nursing; qualitative</Keyword></KeywordList></MedlineCitation><PubmedData><History><PubMedPubDate PubStatus="entrez"><Year>2020</Year><Month>4</Month><Day>16</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate><PubMedPubDate PubStatus="pubmed"><Year>2020</Year><Month>4</Month><Day>16</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate><PubMedPubDate PubStatus="medline"><Year>2021</Year><Month>1</Month><Day>29</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate></History><PublicationStatus>ppublish</PublicationStatus><ArticleIdList><ArticleId IdType="pubmed">32292126</ArticleId><ArticleId IdType="doi">10.1080/17482631.2020.1748362</ArticleId><ArticleId IdType="pmc">PMC7178814</ArticleId></ArticleIdList><ReferenceList><Reference><Citation>Nephrol Nurs J. 2016 Sep-Oct;43(5):411-426</Citation><ArticleIdList><ArticleId IdType="pubmed">30550069</ArticleId></ArticleIdList></Reference><Reference><Citation>Am Psychol. 2000 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Yueh Tao" uniqKey="Chiang Y" first="Yueh-Tao" last="Chiang">Yueh-Tao Chiang</name></noRegion><name sortKey="Chang, Chi Wen" sort="Chang, Chi Wen" uniqKey="Chang C" first="Chi-Wen" last="Chang">Chi-Wen Chang</name><name sortKey="Chang, Chi Wen" sort="Chang, Chi Wen" uniqKey="Chang C" first="Chi-Wen" last="Chang">Chi-Wen Chang</name><name sortKey="Chen, Chi Wen" sort="Chen, Chi Wen" uniqKey="Chen C" first="Chi-Wen" last="Chen">Chi-Wen Chen</name><name sortKey="Chiang, Yueh Tao" sort="Chiang, Yueh Tao" uniqKey="Chiang Y" first="Yueh-Tao" last="Chiang">Yueh-Tao Chiang</name><name sortKey="Huang, Tzu Ting" sort="Huang, Tzu Ting" uniqKey="Huang T" first="Tzu-Ting" last="Huang">Tzu-Ting Huang</name><name sortKey="Huang, Tzu Ting" sort="Huang, Tzu Ting" uniqKey="Huang T" first="Tzu-Ting" last="Huang">Tzu-Ting Huang</name><name sortKey="Lo, Fu Sung" sort="Lo, Fu Sung" uniqKey="Lo F" first="Fu-Sung" last="Lo">Fu-Sung Lo</name><name sortKey="Lo, Fu Sung" sort="Lo, Fu Sung" uniqKey="Lo F" first="Fu-Sung" last="Lo">Fu-Sung Lo</name><name sortKey="Yu, Hsing Yi" sort="Yu, Hsing Yi" uniqKey="Yu H" first="Hsing-Yi" last="Yu">Hsing-Yi Yu</name><name sortKey="Yu, Hsing Yi" sort="Yu, Hsing Yi" uniqKey="Yu H" first="Hsing-Yi" last="Yu">Hsing-Yi Yu</name></country><country name="Belgique"><noRegion><name sortKey="Moons, Philip" sort="Moons, Philip" uniqKey="Moons P" first="Philip" last="Moons">Philip Moons</name></noRegion></country><country name="Suède"><noRegion><name sortKey="Moons, Philip" sort="Moons, Philip" uniqKey="Moons P" first="Philip" last="Moons">Philip Moons</name></noRegion></country><country name="Afrique du Sud"><noRegion><name sortKey="Moons, Philip" sort="Moons, Philip" uniqKey="Moons P" first="Philip" last="Moons">Philip Moons</name></noRegion></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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